Global Alliance on Disability and Health Innovation (GANDHI) (2017-2018)

Background

Without notice, an acute illness or injury can be life-altering. The most vulnerable and underserved population is those who suffer acutely from loss of functionality and drastic change in social role as they transition home from the hospital. Yet this experience and the transition home receive little attention globally. Most measures quantify death, readmissions and burden without truly considering quality of life and how the surrounding system influences recovery.

Project Description

This goal of this Bass Connections project is to grow the Global Alliance on Disability and Health Innovation in breadth (number of countries) and depth (research in phase I countries), and continue to engage faculty, external collaborators and students across learner levels in international mixed methods research committed to health system strengthening to support the transition home from the hospital for adults newly living with disability to achieve their greatest quality of life. Objectives for the 2017-2018 team include:

  1. Grow the interdisciplinary advisory group: Previous team members have identified additional topic experts across Duke to engage in this work.
  2. Pilot studies: A regional focus will help to build research capacity. This team will focus pilots in the Asia-Pacific region including China and the ASEAN countries (Brunei Darussalam, Myanmar, Cambodia, Indonesia, Laos, Malaysia, Philippines, Singapore, Thailand, Vietnam).
  3. Interdisciplinary seminar and multi-nation study: The emphasis for evaluation will be placed on teamwork, peer mentoring and completing a high-quality scientifically sound study established from interdisciplinary consensus and focused on a targeted region such as the ASEAN countries.
  4. Lived experience: Patient-level research will be focused in a small number of the 2016-2017 project’s countries (Argentina, Brazil, Netherlands, Norway, Sweden, China, Singapore, Tanzania, Uganda, United States), and new stakeholder analysis will be structured for the regional focus (ASEAN).
  5. Disseminate, spread, sustain and innovate: This team will have a larger focus on publications and external funding than the previous year’s team, with continued communication via the project website and newsletter.

Anticipated Outcomes

Expanded advisory group; pilot studies in Asia-Pacific region; comparative study; patient-level research in selected countries; dissemination of findings

Timing

Summer 2017 – Summer 2018

  • Summer 2017: Pilots, fieldwork (optional)
  • Fall 2017: Seminar, advisory meeting, comparative study, pilots
  • Spring 2018: Comparative study, advisory meeting, pilots, forums
  • Summer 2018: Fieldwork (optional)

See earlier related team, Global Alliance on Disability and Health Innovation (GANDHI) (2016-2017).

Themes

Faculty/Staff Team Members

Janet Prvu Bettger, School of Medicine - Orthopaedic Surgery*
Harvey Jay Cohen, Center for Study of Aging & Human Development
Deborah Gold, School of Medicine - Psychiatry & Behavioral Sciences; Center for Study of Aging & Human Development
Adam Goode, School of Medicine - Physical Therapy
Bradi Granger, School of Nursing and Duke Heart Center
Michel Landry, School of Medicine - Physical Therapy
Gary Maslow, School of Medicine - Psychiatry and Behavioral Sciences
Truls Ostbye, School of Medicine - Community & Family Medicine
Amy Pastva, School of Medicine - Physical Therapy
Laura Richman, Trinity - Psychology & Neuroscience
Emily Smith, School of Medicine - Division of Global Neurosurgery and Neuroscience
Catherine Staton, School of Medicine - Surgery
Kearsley Stewart, Duke Global Health Institute*
Donald Taylor, Sanford School of Public Policy
Elizabeth Turner, School of Medicine - Biostatistics & Bioinformatics
Heather Whitson, School of Medicine - Medicine - Geriatrics
Gavin Yamey, Duke Global Health Institute
Lijing Yan, Duke Kunshan University - Global Health

Graduate Team Members

Sarah Jean Barton, Divinity - Doctor of Theology
Kira Battle, Doctor of Physical Therapy
Anne Gross, Physical Therapy

Undergraduate Team Members

Chelsea Liu, Computer Science (AB)
Elish Mahajan, Biology (BS)
Maaz Mulla, Biology (BS)
Rachel Shapiro
Jacqueline Xu, Global Health (AB), Public Policy Studies (AB2)

Community Team Members

Bianca Buurman, University of Amsterdam
M. Julia Carrion, HCor Research Institute
Multiple Contributors, Kilimanjaro Christian Medical Centre, Tanzania
Multiple Contributors, Bergen University College, Norway
Multiple Contributors, University of Sao Paolo, Brazil
Multiple Contributors, Hospital Italiano, Argentina
Multiple Contributors, University of Gothenburg, Sweden
Multiple Contributors, New Mulago Hospital, Uganda
Fernando Goldenberg, Hospital Italiano de Buenos Aires
Victoria Marquevich, Hospital Universitario Austral, Pilar, Argentina
Unni Vagstol, Bergen University College, Bergen, Norway

* denotes team leader

Status

Active