Global Alliance on Disability and Health Innovation (GANDHI) (2017-2018)

Background

Without notice, an acute illness or injury can be life-altering. The most vulnerable and underserved population is those who suffer acutely from loss of functionality and drastic change in social role as they transition home from the hospital. Yet this experience and the transition home receive little attention globally. Most measures quantify death, readmissions and burden without truly considering quality of life and how the surrounding system influences recovery.

Project Description

This goal of this Bass Connections project is to grow the Global Alliance on Disability and Health Innovation in breadth (number of countries) and depth (research in phase I countries), and continue to engage faculty, external collaborators and students across learner levels in international mixed methods research committed to health system strengthening to support the transition home from the hospital for adults newly living with disability to achieve their greatest quality of life. Objectives for the 2017-2018 team include:

  1. Grow the interdisciplinary advisory group: Previous team members have identified additional topic experts across Duke to engage in this work.
  2. Pilot studies: A regional focus will help to build research capacity. This team will focus pilots in the Asia-Pacific region including China and the ASEAN countries (Brunei Darussalam, Myanmar, Cambodia, Indonesia, Laos, Malaysia, Philippines, Singapore, Thailand, Vietnam).
  3. Interdisciplinary seminar and multi-nation study: The emphasis for evaluation will be placed on teamwork, peer mentoring and completing a high-quality scientifically sound study established from interdisciplinary consensus and focused on a targeted region such as the ASEAN countries.
  4. Lived experience: Patient-level research will be focused in a small number of the 2016-2017 project’s countries (Argentina, Brazil, Netherlands, Norway, Sweden, China, Singapore, Tanzania, Uganda, United States), and new stakeholder analysis will be structured for the regional focus (ASEAN).
  5. Disseminate, spread, sustain and innovate: This team will have a larger focus on publications and external funding than the previous year’s team, with continued communication via the project website and newsletter.

Anticipated Outcomes

Expanded advisory group; pilot studies in Asia-Pacific region; comparative study; patient-level research in selected countries; dissemination of findings

Timing

Summer 2017 – Summer 2018

  • Summer 2017: Pilots, fieldwork (optional)
  • Fall 2017: Seminar, advisory meeting, comparative study, pilots
  • Spring 2018: Comparative study, advisory meeting, pilots, forums
  • Summer 2018: Fieldwork (optional)

Team Outcomes to Date

Supports and Barriers to Community-based Care for Children with Disabilities in Uganda (poster by Sarah Jean Barton, Lillian Blanchard, Alex Dai, Isabelle Doan, Alex Paulenich, Sahil Sandhu, Janet Prvu Bettger); Judges’ Selection Runner-up at Bass Connections Showcase, April 18, 2018

Lillian Blanchard ’19, Sahil Sandhu ’20 and Jacqueline Xu ’19:, Bass Connections Follow-on Student Research Award

Sarah Barton (Th.D. Program in Theology), Bass Connections Award for Outstanding Mentorship

Addressing Hospital to Home Transitions in Care in Low, Middle and High Income Countries (poster by Jackie Xu)

Qualitative Inquiry for Improving Stroke Care in China (Jackie Xu)

Reflections

Maaz Mulla

This Team in the News

Duke Seniors Share What Was Most Meaningful about Their Bass Connections Experiences

Bass Connections Showcase Presents Research Highlights from Durham to Malaysia

Judges’ Selection for Best Poster Goes to Team Exploring Health Needs of Refugees in Durham

Global Health Projects Featured Prominently among Bass Connections Awards

Three Graduate Students Honored for Outstanding Bass Connections Mentorship

Meet the 2018 Recipients of Bass Connections Follow-on Research Awards

Physical Therapy Student Contributes to Study on Neurosurgery Patients and Rehabilitation Services in Uganda

Leveraging Technology and Cross-sector Partnerships to Improve Stroke Care in China

Three Duke Campuses Collaborate on Digital Health Conference in China

Digital Health Conference in China Brings Together Multiple Perspectives

See related teams, Global Alliance on Disability and Health Innovation (GANDHI): What Makes Innovation Stick? (2018-2019) and Global Alliance on Disability and Health Innovation (GANDHI) (2016-2017).

Themes

Faculty/Staff Team Members

Gary Bennett, Duke Global Digital Health Science Center
Janet Prvu Bettger, School of Medicine-Orthopaedic Surgery*
Amy Pastva, School of Medicine - Physical Therapy
Ryan Shaw, School of Nursing
Catherine Staton, School of Medicine-Surgery
Kearsley Stewart, Duke Global Health Institute*
Lijing Yan, Duke Kunshan University - Global Health

Graduate Team Members

Sarah Jean Barton, Doctor of Theology
Kira Battle, Physical Therapy
Anne Gross, Physical Therapy
Gabrielle Harris, Nursing-PHD

Undergraduate Team Members

Lillian Blanchard, Psychology (AB)
Alex Dai, Biology (AB)
Chunxi Ding, Biomedical Engineering (BSE), Computer Science (AB2)
Isabelle Doan, Public Policy Studies (AB)
Alexandria Hurley, Biology (BS), Medieval & Renaiss St (AB2)
Chelsea Liu, Computer Science (AB)
Elish Mahajan, Biology (BS)
Maaz Mulla, Biology (BS)
Alexandra Paulenich, Biology (AB), Global Health (AB2)
Sahil Sandhu, Program II (AB)
Rachel Shapiro
Athina Vrosgou, Cultural Anthropology (AB)
Jacqueline Xu, Public Policy Studies (AB)
Natalie Yu Chin Wen, Program II (AB)

Community Team Members

Access Health
Duke Kunshan University
Duke-NUS Medical School

* denotes team leader

Status

Active