Children with special healthcare needs (CSHCN) and children with medical complexity (CMC) – or those with chronic and complex medical conditions – represent the highest need and highest cost among the pediatric population. However, care coordination among these populations is poor, which leads to fragmented care, caregiver stress, high hospitalization rates and high healthcare costs.

This project team utilized a novel virtualized human-centered design (HCD) process to elucidate the paint points of care coordination with input from various healthcare stakeholders at all levels of care at the Duke Roxboro Children’s Clinic. Drawing from stakeholder concerns, the team created three prototype interventions designed to enhance the care experience by improving patient care coordination, accessible family oriented resources and family-provider communication, with plans to gather feedback from stakeholders and implement these in a clinical setting and assess for effectiveness in the near future.

Timing

Summer 2020 – Spring 2021

Team Outputs

Design Thinking: Using Virtualized Human-centered Design to Engage Stakeholders and Innovate Pediatric Complex Care Coordination (poster by Claudia Leung, Willis Wong, Danielle Kapustin, Vin Somasundaram, Alice Chun, Natalie Chou, Ashley Isley, Meichun Liu, John Derek Parsons, Viviana Geron, Tsailu Liu, Richard Chung and David Ming)

Patient-centered care prototypes: Personalized Patient Health Passports; Waiting Room Resource Tree; Provider Engagement Tree

Reflection

Alice Chun

This Team in the News

Duke Innovates Together to Advance Health Care

Image: Pediatric neurosurgeon Eric Thompson teaches Duke first-year medical students about the anatomy of the cerebral cortex and the blood vessels that supply blood to the brain during a wet-lab experience with human brain specimens, by Jared Lazarus/Duke University