Crowdsourced Health: Online Patient Communities Enabling Health Innovation (2020-2021)
Social media-based digital health communities (DHCs) play a significant but poorly understood role in shaping the health experiences of numerous patients and caretakers. DHCs exist by the countless thousands on platforms like PatientsLikeMe, Facebook groups, Reddit and other forums. In some cases, these communities have helped fund research or performed the research themselves.
This project explored current online patient communities and profiled several communities to better understand the impacts of DHCs on patient outcomes. The team published their findings in The DHC Observer.
Timing
Fall 2020 – Spring 2021
Team Outputs
Digital Health Communities: A Hidden Resource for Shared Healing (poster by Henry Copeland, Aaron Dinin, Donald Gex, Julia Gianneschi, Lewis Eatherton, Aditya Kotla, Bryant Lewis, Emmie Maceda, Tanvi Rajeev, Yihan Shi, Audra Whithaus and Natalie Wong)
Reflections
This Team in the News
Meet the Members of the 2022-2023 Student Advisory Council
Meet the Members of the 2021-2022 Bass Connections Student Advisory Council
See related team, Digital Health Communities: A Hidden Resource for Shared Healing (2021-2022).