Community Living With Mental Illness: A Sensory Health Initiative (2024-2025)
Background
The U.S. Department of Justice has entered a settlement agreement with the state of North Carolina for failing to provide mental health services in the least restrictive environment as required by the U.S. Supreme Court decision Olmstead v. L.C. As part of the settlement, the state is engaged in widespread efforts to transition adults with serious mental illness to independent living.
Living independently in the community requires stable housing. Obtaining and maintaining stable housing requires mastery of many activities of daily living necessary for successful home management (e.g., bill paying, cooking, shopping, managing transportation). Individuals with severe mental illness often experience significant cognitive and sensory processing challenges that prevent them from successfully completing activities of daily living necessary for maintaining a home.
Supporting the activities of daily living of adults with severe mental illness should be a high priority in policy change. However, there is no existing evidence-based tool to screen adults in this community for challenges with these activities which are needed to identify intervention targets relevant to their independent living and community integration. There is an urgent need to develop a living-skills screen so community mental health providers across the state can quickly identify which supports are needed for their clients. Further, there is a gap in resources to help stakeholders support the functional independence and sensory health of adults with severe mental illness.
Project Description
The project team will partner with adults with severe mental illness (SMI), caregivers and community mental health providers to develop interventions and materials that support and ultimately improve the sensory health and community integration of adults with SMI.
Team members will engage in collaborative, participatory research to identify and understand the living skill and sensory health needs of adults with SMI. They will then work together to develop and disseminate resources (e.g., website, podcasts, videos) to stakeholders to support the sensory health and independent living skills of adults with SMI in the community. They will also develop a feasible and acceptable living skills screen for community behavioral health providers and modify the screen according to stakeholder feedback.
Anticipated Outputs
Activities of daily life screen; videos; podcasts; peer-reviewed manuscript; conference presentations
Student Opportunities
Ideally, this project team will include 2 graduate students in the occupational therapy program and 6 undergraduate students with interests in psychology, anthropology, sociology, computer science and the humanities. A graduate student will be selected to serve as project manager to manage daily administrative tasks and organize meetings.
Students will form and enact community partnerships, participate in working groups and communicate with experts. All team members will have opportunities to provide input on research questions and protocols, draft manuscripts, develop dissemination content, write grant proposals and learn about project administration. In weekly meetings, team members will also participate in a journal club to discuss content related to the project.
In Fall 2024, this team will meet on Tuesdays from 2-3 p.m. in the IPE building.
In an optional summer 2024 component, occupational therapy students will have the opportunity to help finalize the research protocol and group processes.
Timing
Summer 2024 – Summer 2025
- Summer 2024 (optional): Seek IRB approval; identify and recruit working group participants
- Fall 2024: Hold weekly meetings; start focus groups; analyze data; develop screen
- Spring 2025: Continue to develop screen; start working groups; obtain feedback; refine screen; develop media and resources
- Summer 2025 (optional): Produce and post developed media; draft manuscript
Crediting
Academic credit available for fall and spring semesters; summer funding available