Children with medical complexity (CMC) have high rates of health care utilization, require frequent hospitalization and experience many unique challenges in both the transition from the hospital after discharge and in daily life at home. This project team sought to better understand the perspectives of CMC caregivers on barriers and facilitators to good days at home and investigate the hospital-to-home transitional care management process. Several gaps in the systems supporting CMC and their families in care transitions and at home were identified, along with opportunities for improvement.

Timing

Fall 2023 – Spring 2024

Team Outputs

Data on family-centered outcomes and family perspectives on integrated care for CMC

How do we Improve Systems of Care for Children with Medical Complexity? (Poster presented at Fortin Foundation Bass Connections Showcase, April 17, 2024)

Days at Home: Experiences of Caregivers of Children with Medical Complexity (Poster, Spring 2024)

Applying Human-Centered Design to Improve Hospital-to-Home Transitional Care of Children and Youth with Special Health Care Needs (CYSHCN) (Poster, Spring 2024)

See related team, Children’s Complex Care Coalition of North Carolina (4CNC) (2024-2025).